About NanbyoData
About NanbyoData
NanbyoData provides healthcare professionals involved in rare diseases with reliable and up-to-date information, systematically collected and integrated from multiple perspectives to support research and clinical practice.
Accumulating information on nanbyo diseases from diverse perspectives
NanbyoData aggregates rare disease information from a variety of perspectives, including basic research, clinical data, and real-world disease scenarios, all presented in Japanese.
Accumulating information on nanbyo diseases from around the world
NanbyoData compiles rare disease information from around the world, featuring the latest updates from global medical databases and information sites.
Updateing information on nanbyo diseases
NanbyoData plans to publish information on rare diseases targeting the Japanese population, incorporating findings from past research and studies, as well as unique epidemiological data from large-scale medical databases.
Disclaimer
NanbyoData and NANDO strive to provide data in good faith, but do not verify the accuracy, clinical validity, or usefulness of the data. The Database Center for Life Science (DBCLS) bears no responsibility, either expressed or implied, for any actions taken by users using this data. DBCLS also bears no responsibility for any damages incurred due to changes, interruptions, or cessation of this service. Additionally, the terms of this disclaimer align with those outlined in the "Disclaimer" section of the Life Science Integrated Database Center's site policy.
License
The data provided by NANDO and NanbyoData is available for use, including commercial purposes, as long as it adheres to the Creative Commons Attribution 4.0 International (CC-BY 4.0) License. This license allows users to freely replicate or modify the data under these terms. CC-BY 4.0 | Database Center for Life Science (DBCLS)
Sources
- Ministry of Health, Labour and Welfare, "Overview, Diagnostic Criteria, etc." (Accessed July 14, 2020) - Ministry of Health, Labour and Welfare, "Clinical Survey Individual Sheet" (Accessed July 14, 2020) - Center for Chronic Pediatric Diseases, "Overview" (Accessed July 14, 2020) - Center for Chronic Pediatric Diseases, "Opinion Paper" (Accessed July 14, 2020)
Acknowledgements
The construction of this ontology was informed by references to DDrare and RDVJ. The results from the BioHackathon were also utilized in building this ontology.